The Practice of Life Doctoring (2)
As a practice, Life Doctoring is not
simply a type of counselling or analytic ‘talking cure’. That is
because its principal focus is not on the causes and ‘cures’ but
on the meaning of
a specific illness and specific symptoms for the individual patient.
Just as importantly however, as a form of therapy its principal
‘instrument’ is not just a new body of intellectual knowledge and
insights but the Life Doctor’s own lived body as a whole, their
body of feeling awareness or ‘soul’. It is only in this way that
the Life Doctor can come to directly
sense and resonate with the
underlying dis-ease
that pervades the patient’s own soul and its body. Cultivating the
capacity to sense the felt soul-inwardness of a patient’s body
takes us to a level much deeper than intellectual insight or
emotional empathy alone. For the individual’s lived body is
essentially not a fleshly body of tissue and organs but a “body
without organs” (Deleuze), the body of the patient’s own feeling
awareness of themselves, other
people and the world around them. As such it is composed of
particular tones, textures and tissues of
feeling awareness. Like audible vocal
or musical tones these silent
feeling tones or tonalities of awareness have their own distinctive
qualities such as tonal pitch and tone ‘colour’, brightness or
darkness, warmth or coolness, lightness or heaviness, flatness or
sharpness, softness or hardness, clarity or dullness, hollowness or
resonance, harmony or dissonance. They are not just echoed in vocal
and musical tones but also embodied in cellular, organic tone and
muscular tone. Felt tonalities of awareness or feeling tones are what
not only tone and colour our moods but also determine, in a quite
literal sense, the ‘sound-ness’ of our health.
Particular ‘elemental’ qualities
of feeling tone however –
qualities such as fiery vitality, airy spaciousness, watery fluidity
or earthly solidity may be more or less dominant or lacking. Thus, in
the previous case example, the Life Doctor sensed a deep quality of
warmth but a far lesser degree of both fieriness and solidity in the
patient’s overall feeling tone - an absence echoed also in the
corresponding qualities of the patient’s tone of voice. Part of the
therapy also consisted of ‘voice training’ – teaching the
patient to introduce a greater solidity, strength, amplitude and
quality of fiery vitality to her voice tone. This was not done though
any standard methods of ‘voice coaching’ but through first
attuning her to particular qualities of her own inwardly heard speech
– her ‘inner voice’ and its tones – and then imparting these
tones of her inner voice with particular qualities of feeling tone,
volume, fullness etc. – all before
vocalising them audibly.
This particular method of Life Doctoring
is one of many designed to amplify
the patient’s awareness of
silent inner tones of feeling precisely
by giving them outer
expression – whether through the voice tones or silently, through
their face and eyes. The basic methodological principle at the root
of all these practices is the principle of ‘Morphic Resonance’, a
term coined by Rupert Sheldrake but which Life Medicine understands
in a very specific way - and that the Life Doctor applies through a
very specific practice I term ‘Morphic Resonation’. Both the
principle of morphic resonance and the practice of morphic resonation
are based on the understanding that by giving expressive outer form
(morphe)
to particular feeling tones (in particular through the voice, face
and the look in our eyes) we both amplify
and bring ourselves into greater resonance
with these feeling tones –
and thereby with our lived body as such.
Life Medicine understands the patient’s
visible ‘physical’ body as a sensory
image of their soul and its body.
Hence also, the patient’s body language or ‘body speech’
(silent and vocal) is not only a fundamental dimension of what Freud
called ‘organ speech’ but can also be used to give form to,
amplify and alter
a patient’s sense of the felt mood or tone pervading their own
feeling awareness and its body
– their soul body or lived body:
“The outer shape of a person
reflects his inner mood. Changing that shape can change his mood.”
David Boadella
Here ‘shape’ has the same meaning as
morphe
or ‘form’ in the term ‘morphic resonation’. It can refer to
anything from a particular posture, tilt of the head, or any feature,
however fleeting of a person’s facial expression and the look in
their eyes.
“Consciousness in another’s face.
Look into someone else’s face, and see the consciousness in it, and
a particular shade
of consciousness.” Ludwig
Wittgenstein
Perhaps the
single most innovative and advanced method of Life Doctoring – and
one that requires much training is practiced through extended,
close-up eye contact with the patient. Here the Life Doctor uses the
motility and expressiveness of his or her own face and eyes to seek
for and precisely mirror
particular features that he sees and senses in the patient’s face
and their eyes – features that no matter how subtle or fleeting can
be seen and felt to give expression to the patient’s innermost
sense of ‘dis-ease’.
Through this very precise art
of facial and ocular mirroring the Life Doctor can:
- Attune to particular tones and qualities of feeling in the patient by consciously observing and intentionally mirroring them back to the patient.
- Amplify both their own and the patient’s lived experience of these tones and qualities of feeling – thus bringing the patient into greater contact with them.
- Transform the patient’s experience of these tones and qualities of feeling, in particular by moving from a stage of mirroring the patient’s ‘emotional’ feelings to mirroring these back purely as tones of feeling – comparable to purely musical tones and their sensuous qualities.
This three-stage method of Life Doctoring
I call ‘Transformative Resonance’.
In the previous case example, it was
applied by the Life Doctor in roughly the following way:
- By the Life Doctor sensing with their lived body as a whole and then mirroring back through the look in their own eyes and face in an expressively intensified way the surface look of resignation, surrender and ‘sadness’ seen in the patient’s face and eyes.
- By also sensing and mirroring back in intensified way glimpses of the weakly felt ‘anger’ latent within that sadness.
- Sensing and mirroring this ‘anger’ back in a transformed way i.e. not merely as an ‘emotional’ feeling but as a purely sensuous feeling of power, strength and fiery vitality arising from the very core of the patient’s lived body.
- By imparting to the patient’s lived body as a whole the Life Doctor’s own bodily feeling awareness of this quality of fiery strength and vitality.
The recognition of the importance of the
face and eyes in all forms of therapy is not new. And it must
therefore play a central role in any form of therapy in which the
therapist takes the client seriously as ‘some-body’ – not just
a ‘talking head’. Mirroring a patient’s facial expression and
the look in their eyes facilitates a process of mimesis which is
central to sensing, attuning to and resonating with the patient’s
lived body as a whole.
“Without … willingness to read the
secret expression and to nurse it into life, any therapeutic
encounter is gravely weakened.”
“Facing is concerned with
recognition, with how we see people, with the qualities of lumination
that develop when people really face each other and with the forms of
illumination that flash out of such contact. Insight develops in step
with outlook.
If a person can let his inner self be
seen by another, he begins to become recognisable to himself and can
then look within, not in the sense of any sterile introspection, but
in the sense of learning to love and accept who he is, and so
recognise himself.” David
Boadella, Lifestreams
Boadella also quotes an account of
Wilhelm Reich’s work with a patient who suddenly began “seeing
the world with new eyes”, the fear and hate having gone out of
them. As a result he also saw his therapist differently. The process
began with Reich noticing a new gleam in the patient’s eyes, which…
“ …. together with the shifting of
the eyes and head, had brought up a new expression out of the depths
of his eyes and being. It was a flirtatious, come-hither look, a sort
of wink, with a raising of the eyelids, eyebrows and forehead and a
moving of the eyeballs to one side, accompanied by a suggestive
tilting of the head, in the same direction. As the therapist began to
imitate this expression and the patient began to make better contact
with it, the whole face participated in it, at first with a blushing
shame-facedness, and then to the tune of a hearty laugh.”
(ibid)
Reich did not merely “face” or
“confront” the patient with a verbal
mirror or interpretation of
what he had seen and felt in the face and eyes of the patient but
used his own body to mirror it back directly
– thus helping the patient to
feel it more fully. As a result a “miracle” happens:
“Suddenly the patient was
startled and opened his eyes wide with astonishment. While he was
looking at the therapist the latter’s face had suddenly become
soft, and glowed with light…He saw the world differently, as a good
and pleasurable place to be in and as a future place of ‘heaven’
and not the ‘hell’ it had been before.” (ibid)
Bodily sensing and identification is
involved even in the understanding of verbal and indeed philosophical
thinking itself. Wittgenstein again:
“I begin to understand a philosophy
by feeling my way into its existential manner, by reproducing the
tone and accent of the philosopher.”
The Life Doctor must be trained in many
highly subtle and multi-faceted arts or ‘yogas’ of bodily sensing
and resonance – all based on the principle of morphic resonance and
allowing the practice of Transformative Resonance through ‘morphic
resonation’. This training begins with cultivating the Life
Doctor’s capacity to quite literally see into and experience a
patient’s eyes as ‘windows of the soul’ and, through looking
into them, to use their own lived body as a whole to sense, resonate
with and transform the particular “shade of consciousness”
pervading the patient’s own bodily feeling awareness of themselves.
It is in this way that the Life Doctor
can also gain a tangible sense of those tones and qualities of
feeling not
fully embodied or expressed by the patient, but instead ‘somatised’
–
given symbolic expression through their symptoms.
“Every feeling is an embodiment
attuned in this or that way,
a mood that bodies in this or that way.” Martin Heidegger
a mood that bodies in this or that way.” Martin Heidegger
What distinguishes Life Medicine and its
therapeutic methods from those of psychoanalysis is that
psychoanalytic theory understands illness symptoms only as symbolic
‘somatisations’ of feelings that the patient is not capable of
articulating verbally. ‘Somatisation’, in other words, is
understood solely as a failure to give expression to unconscious
feeling in words – hence the emphasis of psychoanalysis on
verbalisation and verbal interpretations of the symbolism of dreams
and mental images.
In contrast, Life Doctoring understands
‘somatisation’ as a failure to find ways to consciously embody
feelings through the patient’s
overall body language and body speech, which verbal language and
speech is itself but one dimension of since it is with our bodies
that we also utter words. In other words, it is not just through some
lack of emotional illiteracy or ‘alexithymia’ as it is called,
but also and above all through lacking a rich and expressive enough
body language
by which to ‘speak’ our feelings that what Freud called ‘organ
speech’ is forced to take the form of illness symptoms or
‘somatisation’.
It is not just that which we cannot
express in words but above all that which we cannot expressively
embody
that we ‘somatise’. Thus, referring back to our case example, it
is not simply someone who cannot express or articulate a feeling of
anger in words but principally someone who cannot simply show
anger through their body speech –
their posture, face and eyes - who
is in greater danger of turning that anger inwards or somatising it.
Indeed someone may well be capable of verbally reporting an emotion
of anger (or any emotion) without or indeed instead of fully feeling
it. For it is through expression in the ‘shape’ or form of their
body speech
that awareness of feelings (and of different tones of
awareness or ‘feeling tones’) are not only given form but also
amplified through
resonance.
What is called ‘emotional illiteracy’
–
to whatever degree it is evident and however important it is in
itself –
almost invariably pales
in extent before the poverty of the average individual’s body
language and the limitations of their most basic ‘alphabet’ of
postures, gestures, vocal tones, facial expressions and ways of
communicating tones of feeling through the look in their eyes. This
impoverishment of body speech and body language is in itself a form
of generalised pathology – since it makes almost unavoidable the
expression (logos)
of a felt sense of dis-ease (pathos)
through illness i.e. through ‘pathological’ bodily or behavioural
symptom
.
Case Example 6
Patient:
a
60 year old man teaching at a college and responsible also as a
community elder for care and support of young people in difficulty.
Symptoms:
heart
arrhythmia, fainting spells, shortness of breath.
Biomedical
diagnosis : atrial
fibrillation (confirmed by ECG) and fibrosis of the lungs confirmed
by X-ray – possibly
connected through lack of sufficient oxygen and resultant shortness
of breath.
Biomedical
prognosis: possibility
of early death (2-3 years) through progressive worsening of fibrosis
in the lungs.
Medications
prescribed: propranolol,
badly tolerated because of side effects and replaced by sotalol –
both intended to slow and regularise heart rate and reduce shortness
of breath, Warfarin to reduce risk of stroke. Statins. Drugs to treat
prostate enlargement.
Possible
surgical interventions suggested:
- Heart surgery in the form of catheter ablation – used to destroy an area of the heart producing abnormal electrical circuits and resulting in disturbances of cardiac rhythm.
- Implantation of a pacemaker to regularise heartbeat.
Principle
reasons for the patient arranging to see a Life Doctor:
- Concern about the prescribed medications and their actual or possible side effects.
- Dissatisfaction with what he experienced as a total lack of any expression of human warmth, empathy and interest on the part of the biomedical doctor s and consultants he had seen (not one of them even asked him about his feelings regarding the possibility of death within 3 years).
- Intrinsic interest in the approach to illness represented by Life Medicine and Life Doctoring.
Initial
questions presented by the Life Doctor:
Questions
regarding the patient’s life history, work and current
relationship.
Questions
concerning the exact life time and location, life context and
situation in which the symptoms first occurred, and how the patient
felt and responded to them.
Questions
regarding the frequency and exact situations and locations in which
the symptoms of atrial fibrillation tend to re-occur.
Initial
impressions and information gained by the Life Doctor:
The
patient was felt as a human being with deep and natural warmth and
empathy, humour and interest in others as well as in philosophical
issues surrounding both methods of counselling and therapy and
medicine itself.
Elements
emphasised by the patient in sharing his life history:
- Early experiences of abandonment. His father abandoned his mother and himself when he was three years old. His mother however, who suffered from on-going withdrawal symptoms resulting from long-term dependency on psychoactive prescription drugs (benzodiazepine ‘tranquilisers’) also abandoned him in a different way. This took the form of lack of attention, empathy or sustained listening. Her resulting and constant inner restlessness, anxiety, depression and self-preoccupation expressed itself in extreme impatience if, as a child, the patient did not instantaneously reply to her questions. Not being given even a moment’s time for reflection and authentic self-expression induced a severe childhood stutter in the patient, since overcome.
- Abandonment by the mother of his children, leaving him in the position of sole carer for three young children without any social or familial support whatsoever even from his brother or sister. This was reinforced by his sister-in-law, who refused to allow visits or even telephone calls with his brother. It was during this period that the patient’s symptoms emerged.
- In contrast, the patient frequently emphasised how much he enjoyed the human contact with his students and how much appreciation they expressed for his warmth, humanity and overall bearing towards them – for example the way he did not ‘talk down’ to them as a teacher, but, as well as offering valuable teaching and insights, also related to them as human beings in their own right in an authentic and non-formal or role-bound way.
Initial
links made by the Life Doctor between the patient’s illness and his
life circumstances:
- Life history of abandonment and the responses to it resulting from the patient’s symptoms.
- Notably, it was only through an initial severe bout of his symptoms while living as an isolated single father that, despite his sister-in-law’s prohibitions, he took the decision to phone his brother and actively seek support.
- The patient’s decision to write to and consult with the Life Doctor was made not just in the context of his medical diagnosis and prognosis, but also his experience (through his mother and others) of the potentially damaging effects of prescription drugs and his sense of not being treated as a human being by medical professionals. Proactively contacting the Life Doctor thus constituted a way in which the patient’s illness itself led him to enact a healthy part of himself – one that refused to surrender to many life experiences of relational isolation and abandonment.
Other
felt impressions from the initial consultation:
- The Life Doctor observed that at no point in the initial consultation did the patient say how his initial account of his illness and life, together with his current medical diagnosis and prognosis left him feeling or thinking (a question which no one, even his current partner, had at any time asked him). Instead the ‘patient’ simply took great pleasure and interest in the opportunity the consultation provided for warm, informal but also patient and therefore insight-generating communication provided by the Life Doctor himself – both as a human being and as a man of similar age with whom he shared common life values, understandings and even experiences.
- On the other hand, the Life Doctor felt, through the patient’s downcast gaze and generally lowered lids, a bodily sense of something like an underlying mood of resignation behind the patient’s otherwise animated, open and interest-full vocal communication. The mood of resignation seemed in contrast to the proactive and healthy steps taken by the patient in response to his experiences of abandonment that his symptoms had led him to enact – leading ultimately to the pleasure and interest he took in the Life-Doctoring consultation itself and his interest in having further sessions. At the same time, the Life Doctor observed that the patient was taking more of an interest in the consultation itself than in his own feelings about his illness. Together with the sensed mood of resignation, the Life Doctor became even more curious about what the essential existential or life ‘dis-ease’ of the patient might be, particularly since the patient had also reported an acute episode of his symptoms in which he felt he might be dying – but also felt quite happy to let go and resign himself to death – therefore in effect abandoning himself.
Between
life and death – the
patient’s essential life dilemma:
Knowing
something of the circumstances surrounding the emergence of the
patient’s symptoms –
and knowing also that despite the fibrosis of his lungs and
occasional shortness of breath walking up steep inclines, the patient
was still able to take mile-long walks without any difficulty – the
Life Doctor returned in the second session to the patient’s
symptoms of atrial fibrillation and asked the patient how frequently
and in what particular circumstances he tended to experience them.
The answer was quickly forthcoming and revealing – whenever he was
at home with his current partner, towards whom he had long felt a
loss of sexual attraction, who did not share any of his interests,
with whom he could not discuss his work as a teacher or any deeper
philosophical and life questions. Indeed it was his partner herself
who – although
the patient described her as very “loving and caring” – made
clear that she felt abandoned by him merely by his reading a book in
her presence. Lacking all forms of physical contact and sexual
fulfilment from the patient led to a progressive increase in the
weight gain that had first diminished his sexual desire for her since
they met. However she was also limited in her willingness and
capacity to openly discuss their physical relationship. This was made
worse by personal and cross-cultural differences which made even
attempts at mutual discussion of the future of their relationship
very difficult.
Placed
in the context of the patient’s radically different experience of
his world of work, the picture that emerged was one of the patient
inhabiting two entirely separate and contrasting life worlds. One
world was the spacious, enlivening, emotionally heartening,
intellectually inspiring and also libidinally restorative (if not
fulfilling) world of his close, authentic and heartfelt relationships
with his students and co-teachers. This was a world in which he was
able to embody his deepest values and abilities as a human being,
share his greatest interests and at least feel if not fulfil strong
sexual desires. The other world was the narrow, enclosed and stifling
world of his sexually and communicatively unsatisfying home life and
relationship with his partner. For this, in contrast, was a world he
experienced each day as disheartening and deadening –
in contrast to the enheartening and enlivening relational world of
his work and students in which he also felt ‘room to breathe’. It
became clear to the Life Doctor that the bodily mood of resignation
he had sensed in the patient had to do with the way the patient had
resigned himself to living in these two contrasting worlds –
one enlivening and enheartening, the other disheartening and
deadening – leaving him with a life quite literally led ‘between
life and death’. The Life Doctor shared with the patient the direct
parallels he saw between this, the essential ‘dis-ease’ of the
patient, and his potentially life-threatening or life-shortening
heart and lung symptoms and the ‘disease’ or ‘disorders’ by
which they were biomedically labelled.
The
patient’s response to the life picture of his illness:
In
the third session, the patient, when questioned, reported how much he
had reflected on, understood and agreed with the ‘life picture’
of his illness offered by the Life Doctor at the end of the second
session and how he also saw the clear relationship it revealed
between his lung and heart condition and his current life situation.
In this session too however, it also became clear to both doctor and
patient that, in the context of his life picture of his illness, the
biggest threat to the patient’s health and life lay not in any
biomedically labelled condition or prognosis but rather in resigning
himself to a life led ‘between life and death’, i.e. between two
life worlds, the one alive and the other dead. The Life Doctor
suggested that the alternative to resignation or self-abandonment in
this limbo state lay in understanding the lived dis-ease and its
bodily symptoms as the expression and embodiment of a fundamental
life dilemma – one which demanded careful consideration and perhaps
new and courageous life decisions from him, not least with regards to
his relationship to and sexual life with his current life partner –
with whom it became clear again that he was extremely ‘ill-at-ease’.
In
this context the Life Doctor became aware, following this session, of
a particular paradox of the patient’s life dilemma and the
potential life decisions it demanded from him – namely that were he
to leave his relationship with his partner or pursue new
relationships whilst staying within it, he himself would become the
abandoner rather than the abandoned. On the other hand, it was
already evident that he had for a long time inwardly been afraid of
or abandoned all attempts to rescue or redeem the relationship, as
had his partner herself – leaving it in a state of routinized,
uncommunicative and death-like limbo, one in which they inhabited
separate worlds even whilst living together.
It
was agreed that future sessions would concentrate on the life
dilemmas and decisions faced by the patient, together with (1)
on-going monitoring of when, in what situations, to what degree and
how often his symptoms occurred and (2) continued discussion of
whether – or which – of the several different prescription drugs
he was taking were necessary. Questions of the role and potential
influence on health exerted by different beliefs about death – and
the existence or not of an afterlife – were also placed on the
agenda for further exploration.
Observation
of the patient’s mood and body language:
Last
but not least, the Life Doctor felt a need to address what he felt as
the patient’s underlying mood of resignation in the face of his
life circumstances and dilemmas. This was expressed very strongly in
the patient’s body language – in particular the tilt of his head
and body, the look in his eyes and his facial expression as a whole.
The Life Doctor observed that the patient tended almost invariably to
tilt his head down to one side and towards his left shoulder. This
was accompanied by a type of worried frown which drew his eyelids
together almost completely – as if squinting in the face of a
bright light – making eye contact with others impossible.
It
was as if the patient had over the years got stuck in a habit of
never fully ‘holding his head high’ rather than leaning it down
to one side – and found it now extremely difficult to do so. His
‘downcast gaze’, in other words, had effectively become part of
his body identity, as had his tendency not to open his eyes fully so
that he could not ‘look people straight in the eye.
The
Life Doctor responded to this by feeding back his observations of the
patient’s body language, mirroring them and explaining to him the
principle that: “The
outer shape of a person reflects his inner mood” (Boadella)
and that “Changing
that shape can change his mood.”.
Noting how even in close up eye contact with the patient –
and
despite attempts to straighten his head and neck –
the
patient still invariably held his head slightly tilted to one side,
the Life Doctor gave the patient inter-session ‘body homework’.
This took the form of suggesting that he attempt to keep his head
perfectly balanced and upright for an entire day or week –
and
to then see and feel how ‘changing his shape’ in this way and
also looking people ‘straight in the eye’ might affect his bodily
sense of self and alter both his mood of resignation and resigned
mode of relating. For his current posture both embodied and
reinforced these –
not
just in his relation to his partner but also his supervising manager.
Progression
and Outcomes of the Life Doctoring Sessions:
The
possibility of a less resigned and more proactive mode of relating –
both verbally and bodily – was heeded by the patient with good
results – initially however only in the context of his relationship
to his supervisor, which he approached in a new, courageous and
effective way.
Though
he also made attempts to move closer to his partner, these were
clearly not successful, and yet they gave further insight into his
heart symptoms. For on further questioning he reported that his
symptoms of atrial fibrillation started or became particularly acute
not just in the presence of his partner but specifically
on occasions when she indicated a desire for sex. The patient
described how on such occasions he experienced strong inner feelings
of guilt at not being able to reciprocate
in any way the love and care he felt he received from her. Rather
than openly and proactively sharing these feelings of guilt with her
– which would itself have at least been a token of his reciprocal
care for her – he would simply say he was “not in the mood ”,
hiding both his feelings and the episodes of atrial fibrillation that
accompanied them. And though the patient took on board a suggestion
to make time to honestly share his feelings with his partner – and
his reasons for not wanting sex – he found this extremely difficult
to do. He even found it impossible to offer his partner any form of
affectionate non-sexual contact such as a hug. Recognising that in
this way he was effectively ‘abandoning’ his partner, The Life
Doctor suggested that this might be a way of acting out his own
history of abandonment by others as well as being part of his general
and long-term inability to experience intimate connection with women
except through sexual arousal and intercourse.
With regards to the patient’s other
symptom – shortness of breath – its initial diagnosis and
prognosis through X-ray scans as a specific form of fibrosis of the
lungs, one which might progressively worsen and even shorten his
remaining life span to two years, was brought into question. For when
the patient met his medical consultant again and asked why a decision
had been taken not
to conduct any further scans but instead to just regularly monitor
the patient’s lung function capacity, the consultant effectively
admitted that the initial scan was not conclusive.
As a result, the patient reported having
no more worries at all about having a potentially terminal illness –
since it was the seemingly premature medical
diagnosis and prognosis itself
that had really ‘taken his breath away’ – causing more anxiety
than his shortness of breath itself. And in the course of his
sessions with the Life Doctor these had become and remained so mild
as to be hardly even abnormal. The patient instead reported going on
long walks again – for him both a major source of pleasure in life
and also his means, besides teaching, of enjoying a sense of
friendship and non-sexual bonding and connection with others.
This is not to imply that the sessions of
Life Doctoring constituted, in and of themselves, a ‘cure’ for
the patient’s illnesses, but rather an opportunity to let them
serve as a cure for the patient – firstly by showing how they
expressed important aspects and dilemmas connected with past and
current life and relationships, and also by urging him to find a new
body identity – one in which a basic mood of resignation to life
could be transformed, quite literally, by learning to ‘hold his
head high’ and ‘look people firmly in the eye’.
Death by Prognosis and the ‘Nocebo
Effect’
– a postscript to Case Example 6
More than two
years after
my work with the patient described in Case Example 6 – whose
initial reason for coming to me was the fear evoked in him by having
been told that given the condition of his lungs he had only
two years of
life left - I was most
surprised to hear from him again by e-mail saying that he had once
again been given a dire and
dread-inducing medical prognosis – this time being told he had only
one year
left. The prognosis was initially given solely on the basis of a poor
result from a lung function test - though, I as immediately suspected
- but only much later admitted to him - this result could not in fact
be regarded as evidence of anything, since it which was conducted
shortly after he had a temporary chest infection. I should add here
that the chest infection itself arose just after he had, once again,
managed (and that in cold and damp winter weather) to take a series
of 12-16 mile walks
with his friends on the Pennine Way – not exactly evidence of a man
whose lungs are about to give in, and that despite his lung fibrosis.
I was very shocked to hear this news –
knowing that according to his first prognosis he should have already
been dead by now, and that it
had taken only a couple of sessions in my work with him to lift the
fears it had aroused in him. Indeed it seemed to me almost as if his
physicians wanted him to die just in order to once again try and
prove a flawed ‘scientific’ prognosis. Knowing also how deeply
depressed he was at having
long since lost the teaching job that was his principal source of
meaning and enjoyment in life – as well as his sole source of
income – and that he had almost no chance of getting another job, I
offered him free consultations – both by phone, at home in my
practice and through correspondence. In the course of these I learned
that his fears of dying had, this time, been even further intensified
by being referred to a specialist palliative care nurse, offered
counselling for terminal illness and advice on writing a Will –
even to the extent of being asked whether he had a pet that he might
want included in it.
My shock turned into outrage however,
when I learned, furthermore, that he had attended a meeting of mutual
support group for patients with the same medical condition, and that
at this meeting a hospital pharmacist had addressed the group in a
clear attempt to persuade them to act as guinea pigs for a new and
highly expensive drug (£30,000 per patient) that might extend their
lives by a few months, yet doing so even whilst
admitting that this very same
drug had been “poorly trialled” and had side effects such as
nausea, loss of appetite and liver toxicity that could significantly
affect patients’ quality of life.
I used my renewed sessions with this
patient to conduct a ‘breath test’ of my own with him and also to
share two important facts and research with him that he might not
know of. The test I conducted was simply to feel the strength of his
abdominal muscles by getting him to attempt to expand his abdomen
against the pressure of my hand. The conclusion I shared with him was
that a big question for me was not how
well or badly he was capable
of breathing (for despite his regular miles-long walking he did
report occasional occasional experiences of shortness of breath) but
how
he breathed.
That was because the result of my own test shocked me – for in all
my years I had never encountered a client, student or patient with
such totally flaccid abdominal muscles – or someone so wholly
incapable of using these muscles – and not just his chest muscles –
to breathe more fully and deeply (something I advise or train all my
patients to do).
One of the important facts I shared with
him was that for many years now (and although this came about
principally as a result of litigation fears among United States
physicians) even doctors in the U.K. National Health Service had been
brainwashed to now consider it more ‘ethical’ to give their
patients a worst-case figure
when it came to their life expectancy. This new, supposedly more
‘ethical’ stance was confirmed by my patient’s own wife when
she questioned the doctors working at the medical clinic at which she
was employed.
I also shared my research into what is
called the ‘nocebo effect’ in contrast to the ‘placebo effect’:
a placebo being a totally inert drug that appears to work simply
because the patient is led to believe
and expect it will, and a
‘nocebo’ being one that has harmful effects for the same reason –
its effects on the patient’s beliefs and expectations.
“The term nocebo
(Latin nocēbō,
"I shall harm", from noceō,
"I harm") was chosen by Walter Kennedy, in 1961, to denote
the counterpart of one of the more recent applications of the term
placebo (Latin
placēbō,
"I shall please", from placeō,
"I please"); namely, that of a placebo being a drug that
produced a beneficial, healthy, pleasant, or desirable consequence in
a subject, as a direct result of that subject's beliefs and
expectations.” Wikipedia
The concept of placebo and nocebo effects
however, has been extended by medical anthropologists to embrace any
type of medical procedure or
even any type of behaviour of communication of physicians that
effects a patient’s beliefs and expectations. Thus the most
effective doctors tend to be those who – in themselves and through
their own way of relating to their patients, have a ‘placebo
effect’ on then patients – for example by giving those patients
both empathy and positive reassurance. In contrast it was all too
clear that my own Life Doctoring patient was suffering from a strong
and deeply troubling ‘nocebo effect’, one stemming not just from
the pessimistic prognosis he had been given but the multiple
bureaucratic procedures and referrals that followed it, in which a
veritable army or ‘task force’ of drug companies, pharmacists,
consultants, nurses and counsellors was targeted at him in a way that
could only intensify his fears and negative expectations.
The concept of a nocebo effect has also
been used to explain the phenomenon of ‘voodoo death’ – people
dying as a result of a firm belief in the fatal powers of a
witchdoctor’s spells, curses or rituals, such as ‘bone pointing’
or giving someone the ‘evil eye’. The modern definition is
broader:
“Voodoo death,
a term coined by Walter Cannon in 1942 also known as psychogenic
death or psychosomatic
death, is the phenomenon of
sudden death as brought about by a strong emotional shock, such as
fear. The anomaly is recognized as "psychosomatic" in that
death is caused by an emotional response – often fear – to some
suggested outside force. Voodoo death is particularly noted in native
societies, and concentration or prisoner of war camps, but the
condition is not specific to any culture or death.
Another scientist—Clifton K. Meador,
MD—in 1992 discussed the case of a man diagnosed with cancer who,
along with his physicians and family, believed he was dying of
cancer. In the autopsy after his death, however, the doctors
discovered that his cancer was not at all the cause of his death.
Meador deduces that the man's belief in his imminent death was the
cause of his death itself.”
Wiki
A third point was made by an associate of
mine, himself a practicing doctor, who reminded my patient that the
medical profession comes to clinical judgements, decisions – and
prognoses – on the basis of patient ‘clusters’ (i.e.
statistics) rather than by assessing patients as individuals.
Together it seemed that my patient was
initially much encouraged by our talks and correspondence, writing
“that I cannot thank you enough for your approach, resources and
commitment, it has given me a different perspective…” and “…has
really helped me to view the disease differently and abate the panic
attacks…” He wrote also that “My major learning lesson has been
that when we are vulnerable and passive, how much power we give up…”
and of his failure to meet any professional he had spoken to who had
heard of the ‘nocebo effect’ – let alone to take any interest
in it or even give it a moment’s thought.
Yet given the basic mood of morbid
resignation towards life that had come to the fore in our first round
of sessions, as well as the continued and deepening depression
associated with his joblessness, general loss of meaning in life –
and the fear occasioned by his ‘new’ prognosis – I was both
immensely saddened and the same time not entirely surprised to learn,
after just a two-month or so interval in our communication, that my
patient had unexpectedly and quickly died. He did so in hospital
following a recurrence of his chest infection after another round of
what he still enjoyed most – walking. Yet it was his death that
prompted me to write this chapter on ‘Death by Prognosis and the
Nocebo Effect’, and it is to him – a most likeable, humble and
gentle man, and one full of human warmth and kindness – that I
dedicate it.
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